Faculty Book: David Bearison
David J. Bearison
The Edge of Medicine: Stories of Dying Children and Their Parents
(Oxford University Press, 2012)
Pediatric end-of-life care raises exceedingly difficult questions: Is there a natural trajectory for children to die in hospitals or at home? How might we, in developmentally appropriate ways, involve children in end-of-life decisions? While there is no “correct” way to die, Bearison concludes that all end-of-life issues in pediatrics boil down to finding ways to respect and honor what patients, under the purview of their families, find is best for them—an idea that is conceptually simple, but practically complex. In this book, he tells the stories of dying children and their families, capturing the full range of uncertainties, hopes, and disappointments involved, using narrative to bridge the disconnect between abstract theories, medical technologies, and clinical realities, illuminating what happens when everyone involved, from medical staff to patients and their families, is struggling with pediatric end-of-life care. David Bearison is professor emeritus of educational psychology and psychology at the Graduate Center.
Purchase this book
Submitted on: AUG 24, 2012